The UNAIDS is the first UN programme to have civil society formally represented on its governing body. The NGO Delegation to the UNAIDS Program Coordinating Board (PCB) has three roles:

  • Participating objectively and independently in the workings and decision-making of the PCB
  • Undertaking various forms of proactive and informed advocacy within the structures and processes of the PCB;
  • Enhancing the transparency and accountability of relevant PCB decision-making and policy-setting, helping to meet requirements for upwards accountability (towards the PCB and other delegations) and downwards accountability (towards the people, communities and constituencies affected by HIV)

Civil Society Representation on the UNAIDS Programme Coordinating Board

Africa

Jonathan Gunthorp

SRHR Africa Trust (SAT) is a 28 year-old African NGO focused on adolescent SRHR & HIV. Working with and for adolescents & young people (10-24 years old) in Southern Africa, and also with communities, advocates and activists, SAT focuses on three impact areas: Increasing access of adolescents and young adults to youth-friendly, gender transformative SRH services and SRH rights; building and strengthening adolescent and young adults’ meaningful participation and leadership in SRHR and health; and advocating for removing barriers to access and strengthening protective environments. SAT works with UN agencies globally and in Southern Africa, with cooperating partners, government ministries, traditional leaders, and young leaders to create partnerships for change. SAT supports the new SADC SRHR strategy and scorecard and works for a region where adolescents have universal access to SRHR & HIV education, information, counseling and services in emerging universal health coverage systems.

Jonathan Gunthorp is the Executive Director of SAT. Based in Johannesburg, he leads SAT’s regional advocacy and innovation for impact in SRHR and HIV. Jonathan sits on the 10-person African Union Commission Civil Society Reference Group on Ending Child Marriage, and has worked in different ways in some 11 African countries. Before joining SAT he worked in fields as various as higher education reform, and TEVET policy, as well as HIV and SRHR. He has an MBA but considers activism his education. His work passion is adolescent health and rights.

Iwatutu Joyce Adewole

African Girl Child Development and Support Initiative is a community-based organization founded in 2015 in Nigeria focused on Sexual and reproductive health and rights of adolescent girls and young women. The organization carries out research and advocacy to influence policies and programs that address the linkage between HIV/AIDS, reproductive health, and sexual and gender-based violence. AGCDSI is a member of the SHEWE coalition under the guidance of International Community of Women Living with HIV (West Africa Region) to advance and bridge SRHR information gaps of adolescent girls and young women living with HIV.

Iwatutu Joyce Adewole is dedicated to creating safe communities for women and girls through policy advocacy, information dissemination and community building. She works with youth-led organizations to design and implement responsive sexual and reproductive health programs and the evidence-based strategy around HIV/AIDS, malaria and TB interventions and support implementation of the strategy for mainstreaming gender and social inclusion and a human rights approach in programme activities. She is the Partnership & Resource Mobilization working group Lead for The PACT, a coalition of youth-led and youth-serving organizations working within the sexual and reproductive health and HIV movement.

Asia and the Pacific



Jules Kim

Jules Kim is a Korean/Australian sex worker and the CEO of Scarlet Alliance, Australian Sex Workers Association -the peak national organisation that has been representing sex workers and sex worker organisations, collectives and projects throughout Australia since 1989. She has been the Chair for the regional sex worker network, Asia Pacific Network of Sex Workers (APNSW) since 2016. Jules represents sex workers on a number of government committees and advisory mechanisms such as the Blood Borne Viruses and Sexually Transmissible Infections Standing Committee and the National Roundtable on Human Trafficking and Slavery. She was appointed by the Federal Minister for Health to the Ministerial Advisory Committee on Blood Borne Viruses and Sexually Transmitted Infections to provide independent, expert advice as a member of the Australian Government’s key advisory body on the national response and management of blood borne viruses and sexually transmitted infections, including HIV and AIDS. Jules has written and presented on a range of issues including sex work, migration, community mobilisation and advocacy and provided testimony and submissions at a range of fora including at government hearings and to the United Nations in relation to human trafficking, law reform, HIV and sex work.She has over 20 years experience in sex worker advocacy, community development and representation.

Charanjit Sharma

Indian Drug Users Forum (IDUF) is a National level forum that promotes the meaningful involvement of people who use drugs (PWUD) in policy and program development. The core belief behind the formation of IDUF is that PWUD living in various parts of the country coming together with one voice can make a bigger impact on the current situation of drug related issues, and can work more effectively towards creating a better environment for PWUD. IDUF believes that grassroots democratic organizing among PWUD at the local, regional, and national level can serve as the building blocks for a social movement that has the strength, determination and staying power to fundamentally change drug policy and programmes that affect the lives of drug users.

Charanjit Sharma brings nearly two decades of professional experience in the fields of drug use, HIV/AIDS, and human rights of people who use drugs. As an activist he is associated with the global Harm Reduction movement, key members of developing guidelines for harm reduction in India and beyond. He is a founding member and currently advisor to Indian Drug Users Forum (IDUF). He started his association with harm reduction as peer educator and is now working as Program Manager of Drug use & harm reduction with Alliance India. Recently, he was instrumental in advocating with India CCM in securing 10 million USD from the Global Fund for direct support, specifically for HIV key population emergency needs during and after effect of COVID-19..

Europe

Alexander Pastoors

Hiv Vereniging is a Dutch HIV grassroots organisation based in Amsterdam. It’s an association founded in 1990 by people living with and affected by HIV for people living with and affected by HIV and it is the only nationwide operating HIV service organisation. Within the association there are multiple sections catering to the specific needs of migrants, women, young people, long term survivors and gay, bisexual and other men who have sex with men (MSM) amongst others. The association functions as a knowledge hub for non biased information about living with HIV and connects people living with HIV to share their experiences. Next to providing good information about living with HIV one of the main focal points of Hiv Vereniging is to fight against stigmatisation and discrimination of people living with HIV. Hiv Vereniging was the local community organisation co-organising AIDS 2018 in Amsterdam.

Alexander has been active as a grassroots community activist within Hiv Vereniging since 2007. He’s been on the board of the association for 6 years, 4 of which he functioned as president. He’s know as a pragmatic, strategic and diplomatic activist building bridges between organisations and connecting people. He’s currently the international affairs representative of Hiv Vereniging. Next to his work in Amsterdam he’s also a member of the board of directors of ICASO (International Council of AIDS Service Organisations) based in Toronto. Apart from his voluntary work in HIV and AIDS he works part time as a policy advisor for the royal institute of Dutch architects in Amsterdam.


Karen Badalyan

Eurasian key populations health network – EKHN (www.ekhn.pl) is a Key Populations communities based and run innovative partnership that leads and inspires the Eurasian region in achieving universal access to HIV prevention, treatment, care and support. We are committed to lead the region to achieving the key global targets, in particular: 1) Sustainable Development Goals (SDG); 2) Universal Health Coverage (UHC); 3) Health 2020; and 4) UNAIDS 90-90-90 Strategy.

In capacity of the EKHN Executive Director, Karen serves as a liaison between Board, Secretariat and Membership. Karen possess diploma of Master of Sciences from Yerevan State University and Doctor of Biology from Armenian National Academy of Sciences. Main topic of studies are immunology, virology and immunogenetic. She is the author of 17 scientific publications, including studies and research and 23 books and IEC.

From 2006 – 2016, she was the elected chair of “We For Civil Equality” community based NGO in Armenia working on HIV/AIDS prevention, treatment and care among key population. Since 2016, she is the Executive Director EKHN. With 15 years of experience in HIV/AIDS, Human Rights, Public Health and Gender, she used to serve as peer reviewer, expert, trainer and consultant for several institutions: amfAR, USAID, UNDP, WHO, UNAIDS, EQUITAS, EATG, GF, MSMGF, etc. In 2014 – 2016, she was the Ombudsperson of EATG and from 2015 she is the Council of Europe SOGIE Expert in the framework of the implementation of activities in the field of combating discrimination on grounds of SOGIE.

Latin America and the Caribbean

Gracia Violeta Ross

Gracia Violeta Ross is Bolivian; she is a Social Anthropologist with postgraduate studies on Gender, Sexual and Reproductive Health.

In 2000, Violeta Ross discovered her HIV positive status and founded the Bolivian Network of People Living with HIV/AIDS (REDBOL) serving as its President in different periods including the present. Violeta led the process for the demand of antiretroviral medications in Bolivia, the elaboration and negotiation of the HIV law and currently leads the demand for inclusion of public funding for the sustainable response to HIV in Bolivia.

Violeta Ross represented Bolivia and Latin America in several global bodies. The roles of representation of Violeta include the Developing Countries NGO Delegation to the Global Fund to fight AIDS, TB and Malaria. Violeta was an adviser to the Civil Society Advisory Group for UN Women in Latin America. She was a member in the TB-HIV Working Group for the Stop TB Partnership, the WHO Civil Society Task Force and advised the Experts Advisory Group to the Medicines Patent Pool. Violeta was the Board Member for the Communities Living with the Diseases Delegation in UNITAID board until 2017.

Ross is a public speaker, writer and researcher on HIV, gender based violence, health and human rights, she writes about her experience as a rape survivor and as a woman living with HIV.

Jumoke Patrick

The Jamaican Network of Seropositives (JN+) is a national network which advocates for the rights and concerns of people living with and affected by HIV, through empowerment, partnership, and resource mobilization. JN+ provide support to the community of People living with HIV through capacity building projects/programmes using our Positive Health Dignity Prevention curriculum (PHDP). The organization receives complaints of HIV-related stigma and discrimination and other human rights violations against persons living with HIV and appropriately address through the Jamaica Anti-Discrimination System for HIV (JADS).

Jumoke Patrick is the Executive Director of the Jamaican network of Seropositives. Patrick’s training and work in the social development industry with non-government organisations as well as the public and private sector has been specifically targeted at improving the lives of Key Populations especially People Living with and affected by HIV made vulnerable by socio-cultural norms, stigma and discrimination other development factors. Jumoke has managed and coordinated many projects for local and multinational agencies including the United Nations Educational, Scientific and Cultural Organization (UNESCO), United States Agency for International Development (USAID), the President’s Emergency Plan for AIDS Relief (Pepfar), UNAIDS etc. Jumoke has also done extensive work with the LGBT community, working with Equality for All Foundation, previously Jamaica Forum for Lesbians, All-Sexuals and Gays (JFLAG), as a Policy and Programme Manager. This young man hosts a wealth of experience and resourcefulness and has already made significant contributions to Jamaica and its communities of vulnerable people.

North America


Andrew Spieldenner

The United States People Living with HIV Caucus (or the HIV Caucus) is a group of organizations, coalitions, networks, client groups and individuals with HIV who advocate for people with HIV in the U.S. Formed in January 2011, the HIV Caucus includes diverse and accountable representation by people living with HIV from throughout the U.S. The HIV Caucus is comprised of all the national networks of people living with HIV – Positive Women’s Network-USA, Positively Trans, Sero Project, Global Network of People living with HIV/AIDS-North America, International Community of Women living with HIV-North America, Reunion Project – as well as local networks in Georgia, Colorado, Iowa and Texas. The HIV Caucus works to collectively advance the voices of people living with HIV in advocacy and in the HIV response. The HIV Caucus has been a key partner to several national initiatives: planning the annual federal HIV legislative lobby day AIDSWatch; increasing Meaningful Involvement of People living with HIV at the local level by training networks of people living with HIV; developing leadership in the of people of color living with HIV in the U.S.; and implementing the HIV Stigma Index.

Andrew R. Spieldenner, Ph.D. is Chair of the United States People living with HIV Caucus and Assistant Professor of Health Communication in the Department of Communication at California State University-San Marcos. Dr. Spieldenner’s research lives at the intersection of public health, communication and sexuality studies. A longtime HIV activist, Dr. Spieldenner has held senior positions at the Latino Commission on AIDS, National Association of People with AIDS, Black AIDS Institute and New York City Department of Health and Mental Hygiene. Openly living with HIV, Dr. Spieldenner works with networks of people living with HIV across North America in leadership development, advocacy and HIV criminalization modernization efforts.

Maureen Owino

The Committee for Accessible AIDS Treatment (CAAT) is a coalition of affected individuals and organizations from the legal, health, settlement and HIV/AIDS sectors committed to promoting the health and wellbeing of people living with HIV who are facing access barriers related to their status using the tools of education, training, research, service coordination and advocacy. Founded in 1999 CAAT’s vision is to have healthy urban community in which all individuals living with HIV have the information and tools they need to access health, social and legal services that are welcoming, inclusive, and respectful regardless of their immigration status. CAAT works to advance the health of affected communities through collective empowerment efforts that engage with diverse partners to build a more compassionate and caring society for all. They work collaboratively with and support the work of local, provincial, national and global networks through a variety of initiatives.

Maureen Owino is the Director of Committee for Accessible AIDS Treatment (CAAT) a position she has held since 2007 Maureen's commitments to Ontario's community of people living with HIV are unparalleled, and many in Ontario benefit from her vision, leadership, and contributions. Her experience as a racialized woman and an emerging academic in her field have deepened our understanding of HIV stigma, anti-Black racism, and health equity. she has been and is an active organizer and advocate for immigrants, refugees, women and youth with HIV/AIDS in Toronto. She has been an active volunteer in many organizations including being a board member of the Black Coalition for AIDS Prevention (Black CAP), Ontario HIV Treatment Network (OHTN), HIV Legal Clinic of Ontario (HALCO) and a steering committee member of the Toronto HIV Network. She is currently a member of the Ontario Advisory Committee on HIV/AIDS (OACHA) and a Community Advisory Committee member for the CIHR Canadian HIV Trials Network (CTN) Maureen is the recipient of the 2017 Ontario AIDS Network’s Caring Hands Award and the 2019 Women’s Health in Women’s Hands Community Health Centre women of resilience awards for resilient leaders. She has a master’s in environmental studies degree from York University is currently a PhD student at York University.


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